Question
I have been having botox for about 4 years nows for migraines/myfascial pain associated TMJ (from botched surgeries) and neck and back spasms.
I THINK I am getting about 800 units every 3 months. He has 6 syringes prefilled (neurologist for Parkinsons Disorders). No I dont have Parkinsons. *thank goodness*
First the GOOD NEWS *I went from going to ER about once a month for
migraines that felt like they might kill me...to going to ER about 3 times a year! GREAT FANTASTIC improvement. So...yes the botox HAS helped my migraines tremendously.
I have increasing side effects from the botox however. This is day 6 and I could barely get out of bed. After day 3 I felt flu like and it has gotten worse. Injection sites never stopped hurting (neck and trapezious muscles) and is actually worse than before. I am sleeping all the time. I am weepy. I am unsteady on my feet (ie, falling into shower wall etc) I have been having difficutly swallowing my food, but have been told over the past few years it is acid reflux..hmmmmm the pieces of puzzle are coming together for me. It is KILLING me to sit here and type this and I am a medical transcriptionist so you can imagine what sitting at a keyboard all day does to me. I have fibromyalgia diagnosed about 4 years ago. So I am 50, told that I look 35 and feel about 100+ inside.
I went for a "water garden" massage after my treatment, as it was right near the doc's office and I hurt SO bad....I am afraid the pressure of the water massage after injection has done something to me and the way the botox was distributed? Who knows. All I know is I am SICK. AND I HURT SO BAD I cannot stand it anymore. I NEED HELP........you cannot touch my shoulders/neck.
Anyone out there who has suggestions, even COMFORT measures? I have pain meds which are barely helping and using ice/heat therapy and jacuzzi tub. Hubby doing massage. NOTHING helping.
THanks and sorry for ALL who are suffering, Shelley [/b]

Answer
I have been having botox for about 4 years nows for migraines/myfascial pain associated TMJ (from botched surgeries) and neck and back spasms.
I THINK I am getting about 800 units every 3 months. He has 6 syringes prefilled (neurologist for Parkinsons Disorders). No I dont have Parkinsons. *thank goodness*
First the GOOD NEWS *I went from going to ER about once a month for
migraines that felt like they might kill me...to going to ER about 3 times a year! GREAT FANTASTIC improvement. So...yes the botox HAS helped my migraines tremendously.
I have increasing side effects from the botox however. This is day 6 and I could barely get out of bed. After day 3 I felt flu like and it has gotten worse. Injection sites never stopped hurting (neck and trapezious muscles) and is actually worse than before. I am sleeping all the time. I am weepy. I am unsteady on my feet (ie, falling into shower wall etc) I have been having difficutly swallowing my food, but have been told over the past few years it is acid reflux..hmmmmm the pieces of puzzle are coming together for me. It is KILLING me to sit here and type this and I am a medical transcriptionist so you can imagine what sitting at a keyboard all day does to me. I have fibromyalgia diagnosed about 4 years ago. So I am 50, told that I look 35 and feel about 100+ inside.
I went for a "water garden" massage after my treatment, as it was right near the doc's office and I hurt SO bad....I am afraid the pressure of the water massage after injection has done something to me and the way the botox was distributed? Who knows. All I know is I am SICK. AND I HURT SO BAD I cannot stand it anymore. I NEED HELP........you cannot touch my shoulders/neck.
Anyone out there who has suggestions, even COMFORT measures? I have pain meds which are barely helping and using ice/heat therapy and jacuzzi tub. Hubby doing massage. NOTHING helping.
THanks and sorry for ALL who are suffering, Shelley [/b]